Burlington MP Karina Gould read petition into the House of Commons record on behalf of Marfan syndrome victims

By Gazette Staff

March 27th, 2026

BURLINGTON, ON

 

Mr. Speaker, I have the honour to rise today to present a petition on behalf of residents of Burlington and citizens of Canada.

Following the tragic loss of her daughter Katie Pryla, a constituent of mine noted that connective tissue disorders, such as Marfan syndrome, often go undiagnosed, despite clear clinical signs such as scoliosis, hypermobility, long limb proportions and early connective tissue complications. It can lead to unforeseen medical consequences, particularly for those who become pregnant.

Therefore, the petitioners are requesting that the Government of Canada establish national screening guidelines for Marfan syndrome and related connective tissue disorders, especially for patients presenting with scoliosis or similar connective tissue disorders; implement national education and awareness programs for physicians, specialists and other health care professionals on identifying and managing connective tissue disorders; require genetic and cardiac screening protocols for IVF and high-risk pregnancy patients with connective tissue indicators; and support public awareness initiatives to educate Canadians on the signs and risks of Marfan syndrome and the importance of early education.

If the government were to do such things, it could help prevent the tragic and unnecessary loss of life.

I am pleased to be able to present this petition on behalf of my constituents.

Return to the Front page

Discover more from Burlington Gazette - Local News, Politics, Community

Subscribe to get the latest posts sent to your email.

2 comments to Burlington MP Karina Gould read petition into the House of Commons record on behalf of Marfan syndrome victims

  • Michael Hribljan

    Liberals need to dramatically reduce immigration and deal with immigration fraud and refuge fraud so the health care resources go to Canadian tax payers.

    On another note, we need our MP to come clean on “forced labour” aka slave labour in China that is used for parts of EV production in China.

    If you missed it, Liberals in the Parliamentary Industry Committee meeting could not back a motion calling out forced labour in China which has been documented and witnessed by the UN and Human Rights Watch.

    Tim Hodgeson deflected questions on this issue to the PM and now Mark Carney is in hiding and not responding to Canadian press.

    To make matters worse China state media reported within hours and of the committee meeting supporting Liberal talking points on slave labour. How was China state media so in tune with a committee meeting in Canada when our own press is not?

    Evidence is clear from the committee meeting, if you buy and EV from China you are supporting slave labour.

    This will have major implication in CUSMA negotiations as Marco Rubio has already called out Canada on this issue several years ago.

    What is our MP’s position on this?

  • Penny Hersh

    I can fully understand the needs of the parents to make this syndrome public. To lose a child is the worst nightmare any parent has to deal with.

    My question is why did Karina Gould “rise today to present a petition”?

    Is it not the Provincial Government that decides where medical dollars are to be spent?

Leave a Reply